Department: Rheumatology Work Schedule/Hours: Monday-Friday 8:30a.m.-5:00p.m 40 hrs.
Sjogren's syndrome (SS) is a systemic disease defined by dryness of the eyes and mouth and arising from a complex autoimmune process. The Sjogren's Syndrome Center is a multidisciplinary unit of individuals dedicated to serving SS patients, while also facilitating scholarship and research to improve patient treatment and syndrome management. Since its inception in 2009, an ACCESS database has been maintained of patients seen at the Center, using IRB-approved protocols for both retrospective and prospective data collection. The database already has entries for over 2000 patients. The Research Assistant will work in the Sjogren's Center on the Johns Hopkins Bayview Medical Center Campus and will report to the Sjogren's Center director and the collaborating statistician. The primary responsibilities will be to oversee the collection, organization, management, preparation and reporting of data to collaborators at the Sjogren's Syndrome Center.
Duties and Responsibilities:
Assist in the design and maintenance of existing project databases primarily in Microsoft ACCESS that contain clinical measurements from a local patient cohort, and use data management software such as ACCESS, SAS, SQL, or R to manipulate data in collaboration with center researchers. As part of this duty, the Research Assistant will:
Create and maintain data dictionaries for datasets.
Import electronic medical record extracted data from various sources and perform data cleaning.
Follow HIPAA and IRB guidelines.
Follow best practices for maintaining data in a secure environment.
Develop routine and systematic quality assurance checks for the integrity of complex data originating from different sources, including EPIC and other clinical settings. As part of this duty, the Research Assistant will:
Develop and oversee procedures to ensure accurate and timely data collection, input and analysis.
Work closely with center leadership and research team in a collaborative environment to prepare and describe data for manuscripts for peer review publication, internal reporting, abstracts/presentations for scientific meetings, and related activities. As part of this duty, the Research Assistant will:
Design and create protocol specific case report forms as needed.
Develop standard analytical summary data files and produce descriptive reports, including tables and graphs.
Participate in design of upcoming studies as well as the preliminary and intern analyses of data.
Perform statistical calculations and assist with preparation of reports, scientific abstract and manuscripts related to projects.
Bachelor's degree in related discipline. Some related experience. Additional education may substitute for required experience and additional related experience may substitute for required education, to the extent permitted by the JHU equivalency formula.
Familiarity and knowledge of programming languages for data management such as Microsoft Access, SAS/Stata, or R required.
JHU Equivalency Formula: 30 undergraduate degree credits (semester hours) or 18 graduate degree credits may substitute for one year of experience. Additional related experience may substitute for required education on the same basis. For jobs where equivalency is permitted, up to two years of non-related college course work may be applied towards the total minimum education/experience required for the respective job.
Master's Degree. Training at the master's level in a related area.
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