Assisting with all activities related to the participation of patients in health technology assessment at the European level (in particular liaising with the EUnetHTA Joint Action 3 activities)
Promoting a European policy for health technology assessment, including a common approach for cost and economic aspects of health technologies
The HTA Stakeholder Involvement Coordinator will be managed directly by Director of Treatment Information & Access.
Organise the consultation of patients in 80 health technology assessments 2017-2020
Organise the participation of patients in 10-15 Early dialogues per year
Launch a reflection process on a common methodology to assess the cost and economic aspects of health technologies used in rare diseases
Collect and analyse feedback from patients’ representatives who participate in HTA procedures at national or European level
Qualifications and requirements:
Minimum 5 years education in health information, heath economy or health policy
Experience in an international environment in the health sector. The candidate needs to demonstrate excellent communication skills
Motivated by non-profit work for rare disease patients: demonstrate ability to work closely with a wide variety of people, to be open- minded, curious, to have proactive relationships, to show empathy and to build social relationships. International and inter-cultural profile.
Fluent English writer/speaker; second and third European language appreciated
Organised, able to multi-task, team worker and autonomous
Proficient in European Computer Driving Licence
Commitment is essential: concerned or really motivated by rare diseases
Non-EEA nationals are required to have a valid work permit
Additional Salary Information: Logistics:
Available to travel (~ 10 to 20% of the time) to support meetings in HTA agencies, organise or attend EURORDIS meetings and trainings all over Europe.
- Full time, permanent contract
- Salary commensurate with experience and profile
- Workplace located at EURORDIS’ headquarters in Paris
Become part of a motivated team of professionals working at EURORDIS - a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe. It was founded in 1997; it is supported by its members and by the French Muscular Dystrophy Association (AFM), th...e European Commission, and corporate foundations and the health industry. EURORDIS represents more than 740 rare disease organisations in over 64 different countries, covering more than 4,000 rare diseases.