Under the direction of the Project Directors and the Research Program Coordinator, the Research Data Analyst (RDA) will work on behalf of the Sickle Cell network (SiNERGE) supported by for the HRSA Sickle Cell Disease Treatment Demonstration Project (SCDTDP) centered at Johns Hopkins University. The primary goals of the program are to help improve health care services and outcomes for children, adolescents and adults in in the Northeast Region (Connecticut, Delaware, District of Columbia, Maryland, Massachusetts, Maine, New Hampshire, New Jersey, Rhode Island, Vermont, Virginia, New York, Pennsylvania, Puerto Rico, US Virgin Islands, and West Virginia) who have sickle cell disease. We will improve the treatment and outcomes for people living with SCD within our collaborative region by: 1. Increasing the number of providers treating individuals with SCD using the National Heart, Lung, and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report; 2. Using telementoring and other provider support strategies to increase the number of providers administering evidence-based sickle cell care; 3. Developing and implementing strategies to improve access to quality care with emphasis on individual and family engagement/partnership, adolescent transitions to adult life, and care in a medical home; 4. Developing and implementing a central data collection strategy for the region that supports the surveillance of objectives 1-3 and appraises the state of SCD care in the Northeast Region. The Research Data Analyst will work primarily in clinical ambulatory, inpatient, and satellite practice site settings with virtual participants and grant partners while adhering to study protocols.
The RDA will perform a variety of research activities to support the regional collaborative study and contribute to the scientific community's body of work understanding disparities in care especially as it pertains to sickle cell disease. The analyst will support SiNERGE network and will contribute to the publication efforts. The RDA will help create and maintain the SiNERGE network RedCap database. The analyst will independently conduct literature reviews and will use analysis tools to assess efficacy of grant activities. The analyst must keep current with published literature and new developments and technologies.
The RDA will maintain the integrity of data collection and databases. Maintain collaborative relations with SiNERGE network partners and internal JHU staff and assist in maintaining all relations with SiNERGE network partners and internal JHU staff and assist in maintaining all deadlines for grant and other deliverables. This individual will create, manage, analyze and report on data for this study as well as other related data of interest to the team.
Database creation and management including data integrity verification.
Creating and maintaining data dictionaries for data-sets.
Providing data collection training and support to the SiNERGE network partners and study team.
Merging data, creating and recoding variables to prepare data for inclusion in various analyses e.g., descriptive, graphical presentations, regression, longitudinal data analysis and non-parametric analysis.
Presenting and summarizing analysis in various formats including raw output, tables, and graphics, oral and written reports.
Preparing reports that summarize the data for the SiNERGE network.
Presenting findings at national conferences and academic
Interacting independently with other data analysts and co-investigators to plan and implement analyses.
Documenting written summaries of analyses.
Requires a bachelor's degree in related discipline. Master's degree in public health, epidemiology, biostatistics and reasonable experience in data analysis and research preferred. Proficiency in major statistical analysis software packages.
Requires a minimum of three years related experience. Additional education may substitute for required experience to the extent permitted by the JHU equivalency formula.
JHU Equivalency Formula: 30 undergraduate degree credits (semester hours) or 18 graduate degree credits may substitute for one year of experience. Additional related experience may substitute for required education on the same basis. For jobs where equivalency is permitted, up to two years of non-related college course work may be applied towards the total minimum education/experience required for the respective
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