The ALS Association Northern New England is seeking a dynamic individual to expand the services that we offer to support people and families living with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease. This position will provide care services, education and advocacy to families living with ALS in the state of Maine. This is a full-time position reporting to the Director of Care Services. Candidates will work remotely and live in the greater Portland area of Maine.
ESSENTIAL JOB RESPONSIBILITIES
Core duties and responsibilities include the following. Other duties may be assigned.
Supports clients and families impacted by ALS
Respond to clients and family inquiries for information on ALS and/or community resources
Provide home visits with ALS/PLS clients
Assist clients in registering with the ALS Association as well as the ALS National Registry
Educate clients and families about the mission of the ALS Association and the latest information about research, advocacy and care services
Facilitate access to chapter services, resources such as Durable Medical Equipment, Assistive Technology, Educational Material and other community resources
Consistently maintains communication with ALS clients and their families
Maintain accurate records/files and provides reports as required
Coordinate Multiple Care Service Programs
Provide support to clients and clinic team as the community liaison within the Maine ALS Clinic
Responds to and coordinates requests for ALS Loan Closet equipment
Facilitates monthly support group meetings and schedules speakers throughout the year to provide education to attendees
Support Professional Outreach Program
Initiate and cultivate relationships with ALS-related healthcare service providers
Provide professional in-service educational programs to healthcare professionals, e.g; Home Health agencies, Durable Medical Equipment(DME) providers, Skilled Nursing Facilities (SNFs) and Hospice Organizations
Convey a professional and positive image that reflects favorably on The ALS Association.
Minimum BA/BS degree in a health/human service related field with a minimum of 3 years professional experience required
Ability to establish and maintain professional relationships with clients, volunteers, human service professionals, the public and co-workers
Strong organizational skills and communication skills, including computer skills.
Ability to function independently within set guidelines
Works with other chapter staff as a team member to provide effective services for people impacted by ALS
A strong work ethic, essential for this demanding environment that continually strives for excellence
Flexibility to travel occasional nights and weekends for Association business and events
Reliable transportation to travel within the tri-state area (Vermont, New Hampshire and Maine)
The ALS Association is the only national not-for-profit health organization dedicated solely to lead the fight against ALS. The Association covers all the bases - research, patient and community services, public education, and advocacy - in providing help and hope to those facing the disease. The mission of The ALS Association is to lead the fight to cure and treat ALS through global, cutting-edge... research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.