The Associate Research Director will work closely with other members of the Research Team to develop and implement CURE’s research strategy and ensure that our research is cutting edge. The Associate Research Director will play a central role in driving progress toward a cure and maintaining CURE’s position at the forefront of epilepsy research. The Associate Research Director will report to the Chief Scientific Officer. Travel is required.
Key responsibilities of the Associate Research Director include the following:
Work closely with the Chief Scientific Officer, other members of the Research Team, board leadership, Scientific Advisory Council, Research and Lay Committees to define and implement the strategic research mission of CURE for maximum impact.
Develop and execute specific research strategies and initiatives to accelerate research discoveries in priority areas. Partner with internal stakeholders to define scientific milestones, goals and objectives of programs and initiatives that directly address CURE’s research agenda. Provide input on budgetary requirements for research programs and initiatives.
Develop communications on strategic direction, scientific trends, portfolio impact and patient priorities.
Work with the Director of Research Administration to develop and approve requests for applications. Screen applications for fit with strategy and objectives. Conduct in-depth assessment of full proposals and recommend a funding portfolio for approval. Provide scientific input on contracts.
Work with funded investigators to anticipate and solve issues related to implementation of projects to ensure milestones are achieved. Ensure timely receipt and approval of progress reports.
Evaluate and implement partnerships and collaboration with public and private entities.
Conduct assessment of applications for Seminar Series and Conference funding, and other programs as needed.
Develop forums to initiate as well as ensure ongoing collaboration and accountability of research program and special initiative goals and objectives.
Assist in the development and delivery of scientific presentations to the Research Committee, Board of Directors and potential donors.
Participate in the CURE Scientific Advisory Council (SAC) as a staff Council member.
Leadership and Management
Build and cultivate influence with public and private stakeholders and develop and maintain relationships with grantees.
Stay closely connected to the dynamic research landscape to identify the most promising areas of scientific advancement in epilepsy research.
Build and cultivate relationships with foundations, government, industry and investors to enable progression of CURE-supported scientific discoveries into cures for epilepsy.
Represent CURE at strategic scientific meetings, workshops, taskforces, committees and assist in the staffing of the CURE Exhibit Booth at various venues.
Represent CURE to external audiences, internal stakeholders and communicate research results to the media as requested, partnering as appropriate with Development and Marketing Communications teams.
Collaborate with CURE Marketing and Communications to effectively support goals of the Research program via strategic communications that include but are not limited to: audience-appropriate research summaries, development of promotional materials including announcements of new awardees and progress reports to key stakeholders.
Partner with the CURE Development team to engage the donor community towards stewardship of research programs, communicate progress and highlight future research opportunities.
Provide input to the Development team to identify private and corporate funding opportunities and fundable research opportunities.
Collaborate with the Development team on donor-related materials that inform on use of financial gifts, and provide summary updates on sponsored research projects.
The preceding description is not designed to be a comprehensive listing of all duties and responsibilities required of the Associate Director of Research.
PhD in Neuroscience or biologically-relevant field with 3 or more years of experience in academia, non-profit, industry or governmental agency
Deep expertise in basic, translational and/or clinical science as it relates to epilepsy
Demonstrated evaluation, planning, coordination, organization, and problem-solving skills with ability to think both strategically and tactically
Demonstrated writing and presentation skills
Demonstrated ability to successfully manage people and teams
Experience working with governmental funding agencies and/or other sources of revenue including venture capital entities, investors and industry partners
Demonstrated results focus and initiative, and attention to detail
Adaptable to a dynamic and fast paced environment
Committed to the development of team, self and others
Ability to work independently as well as collaboratively with staff and volunteers
A collaborative, flexible and inclusive leadership style
Effective communicator, comfortable with public speaking and straightforward individual conversations
Proactively communicates issues, risks or concerns
Robust sense of personal and professional accountability and integrity
Entrepreneurial spirit toward advancement of science
Proactive and action-oriented personality, strong sense of pace and urgency
Citizens United for Research in Epilepsy (CURE) is the leading nongovernmental agency fully committed to funding research in epilepsy. The organization was founded by Susan Axelrod and a small group of parents of children with epilepsy who were frustrated with their inability to protect their children from seizures and the side effects of medications. Unwilling to sit back, they joined forces to... spearhead the search for a cure.
Since its inception in 1998, CURE has been at the forefront of epilepsy research, raising more than $28 million to fund research and other initiatives that will lead the way to a cure for epilepsy. CURE funds grants for young and established investigators and has awarded more than 160 cutting-edge projects in 13 countries around the world to date.
In May 2014, CURE launched a new signature program, the Epilepsy Genetics Initiative (EGI). With an initial $1 million in funding, EGI will create a comprehensive, interactive database where patients can have their genetic data repeatedly analyzed in an effort to identify the cause of their epilepsy. These data will also be made available to epilepsy researchers in an effort to find new causes of epilepsy and use these findings to guide treatment. EGI brings patients, medical professionals, and researchers together in a mutually beneficial way to advance the genetics of epilepsy and to help create a culture of personalized medicine for people with epilepsy.
The leader in Sudden Unexpected Death in Epilepsy (SUDEP) research, CURE has awarded 21 SUDEP-related grants, totaling more than $2 million, since 2004. In 2012, the organization pioneered the first-ever Partners Against Mortality in Epilepsy (PAME) meeting and launched the Infantile Spasms (IS) Research Initiative to accelerate the understanding of IS and advance a new, innovative therapy into the clinic. With $2.1 million in grant funding to date, eight teams of investigators are focusing on cutting-edge research for IS, a rare childhood epilepsy syndrome. The project involves investigators at multiple institutions around the country and uniquely promotes a multidisciplinary, team science approach that encourages collaboration between researchers.
CURE boasts an internal scientific team made up of three accomplished epilepsy researchers, committed to helping find a cure. There is a Scientific Advisory Board comprised of five esteemed epilepsy specialists and more than 300 scientist volunteers who lend their expertise in the field to review grant applications. CURE has a Lay Review Council (LRC) made up of volunteers who have a special interest in understanding epilepsy research. Members of the LRC participate in CURE’s grant review process and read research proposals to ensure the stakeholder point of view is critically represented at all stages.
In 2000, CURE co-sponsored the National Institutes of Health Conference—the first of its kind to focus on a cure for epilepsy. In addition, CURE was one of the key sponsors involved in shaping the direction and outcome of a newly commissioned report released in March 2012, The Public Health Dimensions of the Epilepsies. The organization was instrumental in the creation of the NIH Epilepsy Research Benchmarks, which were created to help guide the community toward a cure.
CURE has led a dramatic shift in the epilepsy research community from simply treating seizures to enhancing understanding of underlying mechanisms and causes, so that cures and preventative strategies can be found. CURE's research program is cutting-edge, dynamic and responsive to new scientific opportunities and directions through both investigator-initiated grants and unprecedented scientific programs and initiatives.
Tireless in its efforts and determination, CURE won’t stop until a CURE is found for epilepsy.